Expert Patient Programme Volunteers
Case studies from some of the volunteers of the Expert Patient Programme
HSJ Awards 2015
In 2015 we were nominated for HSJ Compassionate Patient Care for our work within Cornwall. Our team reached the finals and we were invited to attend a very glitzy event in London. Out of 1600 nominees we got into the final 10 which was a massive achievement for such a small team in Cornwall. The dedication and hard work put in by all the team is absolutely fantastic and we are proud to say we are the rainbow in peoples cloud……
Paul has been a Volunteer Trainer for Expert Patient Programme for 10 years. Last year he won Volunteer Cornwall’s Award as Health Volunteer of the year. He has lived with ME for over 20 years but over the last few years has felt well enough to be able to achieve his goals around walking.
In July 2015, Paul walked for peace from Rome to Jerusalem, arriving there in December. This follows on from a walk the previous year, which was from London to Rome. for the Alzheimer’s Society and the Nordoff Robbins Music Therapy Charity, raising almost £5000. He talked to many people as he walked for three months, helping to raise the awareness of the issues connected with dementia, and also the benefits of music for health. Paul started long-distance walking five years ago. Since then he has become increasingly interested in the growing number of rediscovered ancient pilgrim routes, the reason for the rising popularity of walking these routes, and in a few cases, what motivates people to walk for a particular cause.
Liz attended one of our Newquay courses in 2014 after a work injury left her in permanent pain and having to undergo surgery. She was very worried about training to become a volunteer as she has dyslexia but we assured her this should not be a barrier and we would support her in her new role as a trainer to deliver EPP. She has never looked back and is a very dedicated and important part of the team.
Jacqueline is now a Master Trainer and Assessor for EPP. She started off as one of my Volunteer in 2012 but has worked and trained to become a Master Trainer for this programme.
In October 2015 we were in the finals of the Health Service Journal Patient Compassionate Care award and we had to deliver a presentation to the judges. Jacqueline helped write and deliver the presentation which was based around her own life story. She also delivered a presentation at our AGM to members of staff who were visibly moved by Jacqueline’s story.
In 2015 Jacqueline won Pirate FM’s Inspirational to Others award. People have no idea what Jacqueline goes through on a daily basis but still gives 100% to the groups of Participants. Jacqueline has had heart attacks and open heart surgery along with other illness’s and was in final stage renal failure in November last year when she had a double transplant after waiting 2 1/2 years. Everyone on our courses gain so much from her ability to be gently caring and she has a huge amount of empathy and compassion. She set up a renal support group at RCH which is well attended and a vital service to people living with renal failure and their families.
Caite attended one of the courses after hearing a talk about the benefits of self-management at a local support group. She found it so useful that she trained in 2014 to become a tutor and so far has delivered many courses across Cornwall.
In 2015 we were nominated for Health Service Journals Patient Compassionate Care award and as finalists we had to deliver a presentation to the team of judges. Caite helped write and deliver this presentation and we were delighted to get into the final 10 out of 1600 nominees.
Caite is actively involved in the new Information Café being delivered in Newquay.
Denise attended our course in Merlin MS Centre in 2013 and was so inspired she asked to be trained up so she could deliver the course to other people living with long term ill health. In 2014 Denise trained to become a Trainer for the programme. She shows empathy, gentleness and is very compassionate lady who has enjoyed delivering the course.
Denise also has done her level 2 counselling and is a befriender for Face2Face, supporting families who have children with disabilities.