Paediatric Epilepsy Nurse Specialist Service

Paediatric Epilepsy Nurse Specialist Service help those that have recurrent seizures that start in the brain.

Epilepsy

There are around 40 types of seizures and a person can have more than one type of seizure. Epilepsy can affect anyone, at any age and from any walk of life.
Over 400,000 people in the UK have epilepsy and about 50 million worldwide and approximately 65,000 children in the UK have a diagnosis of epilepsy.
Epilepsy is a neurological condition which is covered by the Disability Discrimation Act.

What is Epilepsy

  • Epilepsy is the tendency to have recurrent seizures that start in the brain
  • The brain uses electrical signals passing between neurones to send messages. Our brain is the ‘control centre’
  • Interruption to these messages or a build up of electrical signals can lead to a seizure
  • What an individual experiences during a seizure will depend on where in the brain the epileptic activity begins and how widely and rapidly it spreads.

Treatment of Epilepsy

  • First line treatment for epilepsy is anti-epileptic medication
  • Anti-epileptic drugs (AEDs) are prescribed to stop seizures occuring
  • AEDs are not a cure for epilepsy
  • There are over 20 different medications, which come in tablets, capsules, liquids, syrups, sprinkles
  • Other treatments include: Vagus Nerve Stimulation (VNS), Ketogenic Diet, Surgery and Complimentary medicine

Existing Referrals and Enquiries

Contact the Children’s Services Care Management Centre on:
01872 221400

Email: cpn-tr.ChildrensCMC@nhs.net
Address:
Children’s Services Care Management Centre
Truro Health Park
Infirmary Hill
Truro
Tr1 2JA

New Referrals

Contact the Early Help Hub on:
01872 322277

Email: earlyhelphub@cornwall.gov.uk

or if you wish to make a referral please use the approriate link below.

The website for professionals is: www.cornwall.gov.uk/earlyhelphub
The website for parents is www.cornwall.gov.uk/earlyhelp

Contact Information

The PENS service is available Monday to Friday 9.00 am – 5.00 pm.

Links

Paediatric Epilepsy Leaflet