Privacy Notice Patients
By issuing this privacy notice, we demonstrate our commitment to openness and accountability.
Why have we issued this privacy notice to Patients and Service Users?
We recognise the importance of protecting personal and confidential information in all that we do, and take care to meet our legal and other duties, including compliance with the following:
- Data Protection Act 2018
- Human Rights Act 1998
- Access to Health Records Act 1990
- Freedom of Information Act 2000
- Health and Social Care Act 2012, 2015
- Public Records Act 1958
- Copyright Design and Patents Act 1988
- Re-Use of Public Sector Information Regs 2004
- Computer Misuse Act 1990
- Common Law Duty of Confidentiality
- NHS Care Records Guarantee for England
- Social Care Records Guarantee for England
- International information Security Standards
- Information Security Code of Practice
- Records Management Code of Practice for Health & Social Care 2016
- Accessible Information Standards
- General Data Protection Regulations 2018
How do we collect your information?
Your information could be collected in a number of different ways. This might be from a referral made by your GP or another healthcare professional you have seen, or perhaps directly from you – in person, over the telephone or on a form you have completed.
There may also be times when information is collected from your relatives or next of kin – for example, if you are taken to one of our departments but you are unconscious or unable communicate.
What information do we collect?
The information that we collect about you may include details such as:
- Name, address, telephone, email, date of birth and next of kin
- Any contact we have had with you through appointments, attendances and home visits
- Details and records of treatment and care, notes and reports about your health, including any allergies or health conditions
- Results of x-rays, scans, blood tests, etc
- Other relevant information from people who care for you and know you well, such as health professionals, relatives and carers.
- We may also collect other information about you, such as your sexuality, race or ethnic origin, religious or other beliefs, and whether you have a disability or require any additional support with appointments (like an interpreter or advocate).
Why do we collect your information?
We collect personal and confidential information about you to support with the delivery of appropriate healthcare and treatment. In order to provide you with high quality care, we must keep records about you, your health and the care that we provide, or plan to provide to you. It is important for us to have a complete picture as this information enables us to provide the right care to meet your individual needs.
How do we keep your information safe and maintain confidentiality?
Under the Data Protection Act 2018, strict principles govern our use of information and our duty to ensure it is kept safe and secure. Your information may be stored within electronic or paper records, or a combination of both. All our records are restricted so that only those individuals who have a need to know the information can get access. This might be through the use of technology or other environmental safeguards.
Everyone working for the NHS is subject to the Common Law Duty of Confidentiality. This means that any information that you provide to us in confidence will only be used in connection with the purpose for which it was provided, unless we have specific consent from you or there are other special circumstances covered by law.
Under the NHS Confidentiality Code of Conduct, all of our staff are required to protect information, inform you of how your information will be used, and allow you to decide if and how your information can be shared.
Every NHS organisation has a senior person that is responsible for protecting the confidentiality of your information and enabling appropriate sharing. This person is known as the Caldicott Guardian, and within our trust this role sits with our Medical Director. You can find more details online:
How do we use your information and why is this important?
We use your information to ensure that:
- The right decisions are made about your care
- Your treatment is safe and effective; and
- We can work well with other organisations that may be involved in your care
This is important because having accurate and up-to-date information will assist us in providing you with the best possible care. It also ensures that all information is readily available if you see another health professional or specialist within our trust or another part of the NHS.
There is also the potential for your information to help improve health care and other services across our trust and the wider NHS. Therefore, your information may also be used to help with:
- Ensuring that our services can be planned to meet the future needs of patients
- Reviewing the care provided to ensure it is of the highest standard possible, improving individual diagnosis and care
- Evaluating and improving patient safety
- Training other healthcare professionals
- Conducting clinical research and audits, and understanding more about health risks and causes to develop new treatments
- Preparing statistics on NHS performance and monitoring how we spend public money
- Supporting the health of the general public
- Evaluating Government and NHS policies
Do we share your information with anyone else?
To help provide you with the best possible care, sometimes we will need to share your information with others. However, any sharing of information will always be governed by specific rules and laws. We may share your information with a range of health and social care organisations and regulatory bodies. You may be contacted by any one of these organisations for a specific reason, and they will have a duty of telling you why they have contacted you.
Sharing with other organisations
We work with a number of other NHS organisations and independent treatment centres and clinics to provide you with the best possible care. To support this, your information may be securely shared.
Where the sharing involves a non-NHS organisation, a specific information sharing agreement is put in place to ensure that only relevant information is shared and this is done securely in a way which complies with the law.
Unless there are exceptional circumstances (such as a likely risk to the health and safety of others) or a valid reason permitted by law, we will not disclose any information to third parties which can be used to identify you without your consent.
We are currently working with an external provider, Newton Europe Limited (Newton), on a diagnostic review of the interaction of Older People’s acute, community and social care services across Cornwall. The aim of the review is to examine the effectiveness of current processes and to identify improvement opportunities to benefit the people of Cornwall and assist in the management of the Cornwall health and social care system. The review will involve Newton analysing certain data held by us and other Cornwall health and social care providers (listed below).
As a result, a Data Processing Agreement has been entered into between Newton and the following organisations: Cornwall Council, NHS Kernow Clinical Commissioning Group, Royal Cornwall Hospitals NHS Trust, Cornwall Partnership NHS Foundation Trust and University Hospitals Plymouth NHS Trust. The Data Processing Agreement includes safeguards to ensure that personal data is used appropriately during the review. In particular, any use of personal data as part of the review will be restricted to pseudonymised data only. Under GDPR, the legal basis for this use of this data is it is a public task (see Article 6e) and it relates to the management and provision of health and care treatment (see Article 9h).
Mandatory information sharing
Sometimes we are required by law to disclose or report certain information which may include details which identify you. However, this is only done after formal authority by the Courts or by a qualified health professional. This may include reporting a serious crime or identification of an infectious disease that may endanger the safety of others. Where this disclosure is necessary, only the minimum amount of information is released.
We are also required to send statutory information to the Department of Health, which is then held centrally and strictly controlled by the NHS Information Authority. This organisation takes advice from an independent board called the Security and Confidentiality Advisory Group, which reports to the government Chief Medical Officer.
There may also be occasions when the trust is reviewed by an independent auditor, which could involve reviewing randomly selected patient information to ensure we are legally compliant.
How the NHS and care services use your information
Cornwall partnership NHS Foundation Trust is one of many organisations working in the health and care system to improve care for patients and the public.
Whenever you use a health or care service, such as attending Accident & Emergency or using Community Care services, important information about you is collected in a patient record for that service. Collecting this information helps to ensure you get the best possible care and treatment.
The information collected about you when you use these services can also be used and provided to other organisations for purposes beyond your individual care, for instance to help with:
- improving the quality and standards of care provided
- research into the development of new treatments
- preventing illness and diseases
- monitoring safety
- planning services
This may only take place when there is a clear legal basis to use this information. All these uses help to provide better health and care for you, your family and future generations. Confidential patient information about your health and care is only used like this where allowed by law.
Most of the time, anonymized data is used for research and planning so that you cannot be identified in which case your confidential patient information isn’t needed.
You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt out your confidential patient information will still be used to support your individual care.
To find out more or to register your choice to opt out, please visit www.nhs.uk/your-nhs-data-matters. On this web page you will:
- See what is meant by confidential patient information
- Find examples of when confidential patient information is used for individual care and examples of when it is used for purposes beyond individual care
- Find out more about the benefits of sharing data
- Understand more about who uses the data
- Find out how your data is protected
- Be able to access the system to view, set or change your opt-out setting
- Find the contact telephone number if you want to know any more or to set/change your opt-out by phone
- See the situations where the opt-out will not apply
You can also find out more about how patient information is used at:
www.hra.nhs.uk/information-about-patients (which covers health and care research); and
understandingpatientdata.org.uk/what-you-need-know (which covers how and why patient information is used, the safeguards and how decisions are made)
You can change your mind about your choice at any time.
Data being used or shared for purposes beyond individual care does not include your data being shared with insurance companies or used for marketing purposes and data would only be used in this way with your specific agreement.
Health and care organisations have until 2020 to put systems and processes in place so they can be compliant with the national data opt-out and apply your choice to any confidential patient information they use or share for purposes beyond your individual care. Our organisation is currently compliant with the national data opt-out policy.
Clinical training, research and audit
Some health records are needed to teach student clinicians about rare cases and diseases. Without such materials, new doctors and nurses would not be properly prepared to treat you and others. It is also possible that individuals, such as student nurses, medical students and healthcare cadets, are receiving training in the service that is caring for you. If staff would like a student to be present, they will always ask for your permission and you have the right to refuse without this effecting the care or treatment that you are receiving.
We also undertake clinical research and audits within the trust, and your permission may be required for some of this work. If you agree to be involved, a full explanation will be given and your consent will be obtained before proceeding. Your consent may not be required if the information being used has been anonymised. This means that it cannot be used to identify an individual person.
Do you have the right to withhold/withdraw consent for info sharing?
You have the right to refuse (or withdraw) consent to information sharing at any time. This is also referred to as ‘opting out’. If you choose to prevent your information from being disclosed to other authorised professionals involved in your care, it might mean the care that can be provided is limited and, in certain circumstances, it may not be possible to offer certain treatment options. The possible consequences of withholding your consent will be fully explained to you at the time should this situation occur.
You also have the right to ‘opt out’ of having your information used in any mandatory audits which the trust is subjected to. If this is the case, you should write to our Information Governance team with your name, address, date of birth and hospital number or NHS number.
How can you access the information that we hold about you?
Under the terms of the Data Protection Act 2018 and the General Data Protection Regulations 2018, you have the right to request access to the information that we hold about you.
To support you through the process, we have a policy on the Trust website, available at: Subject Access Request Policy and Procedure
You can also request further information or an application form, by one of the following means:
Post: The Subject Access Request Team, Cornwall Partnership NHS Foundation Trust, Large Meeting Room, Camborne Redruth Community Hospital, Barncoose Terrace, Redruth, Cornwall, TR15 3ER
Tel: 01209 204008, 01209 204009 or 01209 244010
How to contact us with queries or concerns about this privacy notice?
If you have any queries or concerns regarding the information that we hold about you or you have a question regarding this privacy notice, please contact our Information Governance team:
Post: Information Governance Department, Cornwall Partnership NHS Foundation Trust, Suite 6, Carew House, Beacon Technology Park, Dunmere Road, Bodmin, Cornwall, PL31 2QN
Tel: 01208 834495
How long do we retain your records?
All our records are destroyed in accordance with the IGA Records Management Code of Practice for Health and Social Care 2016, which sets out the appropriate length of time each type of NHS record is retained. We do not keep your records for longer than necessary.
All records are appropriately reviewed once their retention period has been met, and the Trust will decide whether the record still requires retention or should be confidentially destroyed. All decisions and destructions will be documented.
How can you make a complaint?
You have the right to make a complaint if you feel unhappy about how we hold, use or share your information. We would recommend contacting our Information Governance team initially to talk through any concerns that you have.
It may also be possible to resolve your concerns through a discussion with our Patient Advice and Liaison Service (PALS) before (or without the need to start) a more formal process:
Address: Patient Experience Team, Room 11, Banham House, Bodmin Hospital ,PL31 2QT
Tel: 01208 834620
If you remain dissatisfied following the outcome of your complaint, you may then wish to contact the Information Commissioner’s Office:
Post: Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF
Phone: 0303 123 1113
Please note that the Information Commissioner will not normally consider an appeal until you have exhausted your rights of complaint to us directly. Please see the website above for further advice.
CQC and accessing data
Under data protection laws, providers are required to be clear with people about how and why any data they hold on them might be accessed and used. This is often done through privacy notices on websites. We would encourage providers to ensure that notices of this type include reference to CQC and a link to our privacy notice, as we may access care records and other personal data as part of our regulatory activity.
Changes to this Privacy Notice?
We will occasionally update this Privacy and Fair Collection webpage to reflect company and customer feedback. We therefore encourage you to periodically review this webpage in case of any changes.